unh unh ee ah unh-ur unh.â
âSlow down. I canât tell what youâre saying.â
âAnh uh eh ih ee. Ah ehr. Oh. Eh ee oh.â
âAre you in pain?â
âEh!â
Penny marches to the nursesâ station, tears in her eyes. âMy fatherâs still in pain,â she tells the nurse sitting there. âAnd now he canât fucking talk .â
âIâll ask you to use civilized language,â the nurse says, looking up from her cell phone. âTerminal distress and agitation are normal. If he doesnât fall asleep in a few minutes, I can send for the chaplain.â
âHeâs upset because heâs in pain and they wonât give him any painkillers! All he got was a muscle relaxant!â
A doctor sits filling out a form at a desk behind the nurse. He looks up and says, âI could ask him whether heâd like a sedative.â
âThatâs an idea,â Penny says. âHe told me once he used to take Valium on boat rides, after he was on this ferry on the Amazon that burned and he got this fear of ships. He said Valium set him right up!â She almost laughs herself at the ridiculousness of Normâs phobia, so she is surprised when the doctor says something even sillier: that Valium could damage his liver.
âDamage his liver ? Who cares ? Heâs dying!â
âIt could hasten death,â the doctor says. âWe donât assist anyone here to die more quickly. Itâs God who decides how and when that will happen. We simply allow nature to take its course.â
âWe didnât come here to let God and nature decide. We can get them for free by walking out the door.â
âWhat you need to understand is, your father is not dying. Not yet. His lungs sound normal. No crackles. His kidneys are functioning. Heâs at a very early stage. But if heâs having more psychological distress than he can tolerate, I could consider starting him on twilight sedation. Itâs state of the art in end-of-life care.â
âFirst you have to get him off those muscle relaxants so he can communicate! He wasnât distressed before, just in pain.â
âIâll go see him now, and Iâll ask him if he wants sedation, and weâll think about alternatives. I promise.â The doctor gives Penny his hand. âYou should go home and relax. Take a day off and get some rest.â
âWhat if he dies today?â
âNot a chance,â he assures her.
FOUR DAYS PASS. PENNY SITS by Norm, giving him ice cubes to eat. He coughs. He runs the ice cubes around his mouth with his tongue, but he canât swallow the liquid water. It runs into his beard, which is cut very short.
âHeâs not thirsty anymore,â a nurse explains.
âWah,â he protests.
âHeâs asking for water,â Penny insists.
âItâs a habit,â the nurse explains again. âHeâs on twilight sedation. He doesnât know what heâs saying. Heâs used to asking for water. Itâs a habit like anything else.â
âWah,â Norm says.
âYOU CAN DO ORAL CARE yourself,â a friendly orderly tells Penny two days later. She shows her how to dip a rough rectangular sponge on a lollipop stick in water and offer it to him.
Norm sucks it hard. His spit forms a sticky web around the green sponge. The inside of his mouth is yellow, crusted with dried snot. The orderly shows Penny how to swab his teeth and tongue gently so that the crust still obscures his soft palate completely, obstructing his windpipe.
âCanât you get that stuff out so he can breathe?â Penny asks.
The orderly shakes her head. âItâs not our policy to perform suction. That would only prolong his life.â
Penny runs a swab around the back of Normâs throat and twirls it. The substance collects on the swab like cotton candy. She throws it away and tries another swab. A plate
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