Mama.â
âGod can wait for a while. Right now itâs more urgent to look for a doctor. Whatâs the matter with you, Paula?â
âPorphyria,â you replied without hesitation. Since learning several years earlier you had inherited the condition, you had taken very good care of yourself, and regularly consulted one of the few specialists in Spain. When Ernesto found you so weak, he took you to the emergency room; they diagnosed flu, and sent you back home. That night your husband told me that for weeks, even months, you had been tense and tired. As we sat and discussed what we thought was depression, you were suffering behind the closed door of your bedroom; the porphyria was poisoning you, and neither of us saw it. I donât know how I went on with my obligations; my mind was on you, and in a break between interviews I ran to the telephone to call. The minute I heard you were worse, I canceled the rest of my tour and flew to the hospital. I ran up the six flights of stairs and located your room in this monstrous building. I found you lying in bed, ashen, with a disoriented expression on your face. One glance was enough to realize how ill you were.
âWhy are you crying?â you asked in an unrecognizable voice.
âBecause Iâm afraid. I love you, Paula.â
âI love you, too, Mama.â
That was the last thing you said to me, Paula. Instants later you were delirious, babbling numbers, with your eyes fixed on the ceiling. Ernesto and I sat beside your bed all night, in a daze, taking turns in the one available chair, while in other beds in the room an elderly patient was dying, a demented woman was screaming, and an undernourished Gypsy girl with signs of a recent beating tried to sleep. At dawn I convinced your husband to go rest, he was exhausted from being up several nights. He kissed you goodbye and left. An hour later the true horror was unleashed: a spine-chilling vomit of blood followed by convulsions. Your tense body arched upward, shuddering in violent spasms that lifted you from the bed. Your arms trembled and your fingers contracted as if you were trying to hold on to something. Your eyes were filled with terror, your face congested, and saliva ran from your mouth. I threw my body on yours to hold you down, and screamed at the top of my lungs for help. The room filled with people in white, and I was dragged out of the room by force. I remember finding myself kneeling on the floor, then being slapped. âBe quiet, Señora; you must be calm or you will have to leave.â A male nurse was shaking me. âYour daughter is better now, you can go in.â I tried to stand but my knees buckled. Someone helped me to your bed and then left. I was alone with you and with the patients in the other beds, who were watching in silence, each deep in her own private hell. Your color was ghostly, your eyes were rolled back, dried blood threaded from your lips, and you were cold. I waited, calling you by all the names I had given you as a little girl, but you were far away in another world. I tried to get you to drink a little water. When I shook you, you looked at me with glassy, dilated eyes, staring through me toward another horizon, and then suddenly you were as still as death, not breathing. Somehow I called for help, and immediately tried to give you mouth-to-mouth resuscitation, but fear made me clumsy. I did everything badly. I blew air into your mouth erratically, any way at all, five or six times, and then I noticed your heart had stopped beating, and began to pound your chest with my fists. Help arrived seconds later, and the last thing I saw was your bed hurtling toward the elevator at the end of the corridor. From that moment life stopped for you. And for me. Together we crossed a mysterious threshold and entered a zone of inky darkness.
âHer condition is critical,â the physician on call in the intensive care unit told me.
âShould I call her
Janwillem van de Wetering